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 A Review of “Just Jen” by Jen Powley

Last week, I had the honor of being contacted by Jen Powley, an amazing and inspiring woman who has spent nearly her entire lifetime battling an aggressive form of progressive multiple sclerosis. She is a quadriplegic, is catheterized, and is on a feeding tube. She had the opportunity to write a memoir and asked if I’d like to read her book, which is due to be published in May of this year, and review it from the standpoint of someone who lives with MS.

Continue reading ” A Review of “Just Jen” by Jen Powley”

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Choose Your Own Adventure: A Day in the Life

Alright, gumshoes! Have you ever considered every decision you make throughout a single day? Neither have I–until those small decisions had the potential to turn into big consequences.

My most recent article for the National Multiple Sclerosis Society is LIVE on their blog and you can read and interact with it by clicking here! It offers a tiny glimpse into a day in the life of someone who lives with a chronic illness and it was inspired by one of my favorite books as a child, starring Carmen Sandiego.

Say…where in the world is she, anyway? 😉


Hey! I’m on FacebookTwitterInstagram, and YouTube. Follow me for updates and musings between blog postings!

You can also read articles I’ve written for the National Multiple Sclerosis Society here!

Want to get updated when I post a new blog entry? Enter your email address in the field on the right side of your screen and get treated to an email alert when I post here! How modern!

Questions, comments, or love letters you don’t feel comfortable posting in the comments below? Email me at itsonlyabruise@gmail.com.

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Becoming Superwoman: New article on MSConnection.org!

We are responsible for what we choose to do when faced with adversity–are you a Harvey Dent? Or are you Batman?

The most recent article I’ve written for the National MS Society’s blog is now live! You can read and interact with it by clicking here!

 

🙂


Hey! I’m on FacebookTwitterInstagram, and YouTube. Follow me for updates and musings between blog postings!

You can also read articles I’ve written for the National Multiple Sclerosis Society here!

Want to get updated when I post a new blog entry? Enter your email address in the field on the right side of your screen and get treated to an email alert when I post here! How modern!

Questions, comments, or love letters you don’t feel comfortable posting in the comments below? Email me at itsonlyabruise@gmail.com.

It’s Only a Bruise on YouTube!

Hey everyone! I mentioned in my last post that I was tossing around the idea of starting a YouTube channel under the IOaB umbrella…so I did! I want to use the channel for Q&As…perhaps my sweet and super exciting injection techniques? I’m open to any suggestions you might have. 🙂

I’ll be uploading a couple things over the next day or so to get the ball rolling. What would you like to see?

I need 100 subscribers before YouTube lets me have a custom URL, so please consider subscribing by following this link and clicking “Subscribe”–super easy and quick!

More soon…

Also! Have you taken the survey yet?

 


Hey! I’m on FacebookTwitterInstagram, and YouTube. Follow me for updates and musings between blog postings!

You can also read articles I’ve written for the National Multiple Sclerosis Society here!

Want to get updated when I post a new blog entry? Enter your email address in the field on the right side of your screen and get treated to an email alert when I post here! How modern!

Questions, comments, or love letters you don’t feel comfortable posting in the comments below? Email me at itsonlyabruise@gmail.com.

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To Say or Not to Say?

With the recent news of a new active lesion and talks about shaking up my treatment plan again following what was possibly my first attack in almost a year and a half, I find myself retracing the first steps I took during my diagnosis process almost three and a half years ago.

Because he felt that the risk outweighed the benefit, in my case, my doctor opted not to treat the inflammation from my new lesion with steroids, but I’ve been asked to keep other therapy options open and in the back of my mind. For now, we’re going to increase my Rebif dosage (for the third time) and hope that this time is the charm. And while I’m not looking forward to the increased pain level when injecting with a higher dose or the fear of facing more adverse reactions, I’m happy with that decision. It’s so taxing to switch therapies and now I’m starting to slowly drift into the realm of “last resort” medications, like Tysabri (which, from what I’ve been told by people who take it, is really fantastic….but can cause a brain infection and kill you).

Continue reading “To Say or Not to Say?”

Taking My Own Advice: New Blog on MSConnection.org

What crazy timing that my latest article for the National MS Society should go live, just minutes after my doctor called to tell me I have a new active lesion in part of my brain.

It’s easy to slip into a sorry state and imagine what life would be like without this disease haunting me, but it’s days like today that I need to remember the good (yes, you read that right) that has come from this.

You can read and interact with my latest article by clicking here.

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Hey! I’m on FacebookTwitter, and Instagram. Follow me for updates and musings between blog postings!

You can also read articles I’ve written for the National Multiple Sclerosis Society here!

Want to get updated when I post a new blog entry? Enter your email address in the field on the right side of your screen and get treated to an email alert when I post here! How modern!

Questions, comments, or love letters you don’t feel comfortable posting in the comments below? Email me at itsonlyabruise@gmail.com.

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A Mother’s Touch

This summer really flew by, didn’t it? This year’s heat and humidity seemed to make a pretty noticeable difference in my day-to-day–more so than the last few summers. Or maybe it seems that way because it’s still so fresh in my mind.

I went in for a routine visit with Dr. Brain last week and, while my fancy sobriety test-esque exam went well, he told me precisely what I didn’t want to hear.

Continue reading “A Mother’s Touch”

Let’s SMASH it!

We’re almost there! My husband is riding in his first BIKE MS this weekend. He’s really jazzed about it and is really taking to heart that the pain, fatigue, exhaustion, heat sensitivity, and even bladder urgency that he will experience during and after his ride is just a small taste of what we MSers experience every day.

He’s SO CLOSE to his inaugural goal of $1000, but is now also offering up a challenge. On top of riding the already ambitious 100 miles over the course of two days, if we can help him raise $1250, he’ll ride a total of 125 miles. If we can get him to $1500, he’ll ride an insane 150 miles over the course of two days. On a bicycle.

Every single dollar truly makes a difference in advancing research and treatment options for us. He’s riding for each and every one of us. This is truly a ride of love.

Please consider helping him smash his goal by donating. You can do so by clicking here.

If for nothing else, do it for that fabulous beard.

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Hey! I’m on FacebookTwitter, and Instagram. Follow me for updates and musings between blog postings!

You can also read articles I’ve written for the National Multiple Sclerosis Society here!

Want to get updated when I post a new blog entry? Enter your email address in the field on the right side of your screen and get treated to an email alert when I post here! How modern!

Questions, comments, or love letters you don’t feel comfortable posting in the comments below? Email me at itsonlyabruise@gmail.com.